A Better St. Louis. Powered by Journalism.
  • Twitter
  • Facebook
  • Print
  • Email

One in 72 St. Louis children has an autism spectrum disorder, says CDC study

In Health

10:53 am on Fri, 03.30.12

Autism rose in 14 communities, including St. Louis and several Missouri counties, in 2008, the Centers for Disease Control and Prevention reported Thursday. It said the prevalence of autism spectrum disorders among 8-year-olds in in Missouri communities was 13.9 for every 1,000 children — or 1 for every 72 children in that age group.

The national rate, based on data from all 14 sites, was 11.3 for every 1,000 children, or 1 in 88.  Utah had the highest rate at 21.2 and Alabama the lowest at 4.8, CDC officials said.

Autism spectrum disorders are described as a group of developmental disabilities involving impaired social interaction and communication as well as restricted or repetitive patterns of behavior. The CDC says symptoms typically become apparent before age 3. Absence of biologic markers for a diagnosis and changes in clinical defintions over the years have made it difficult to monitor the prevalence of the disease.

Washington University is one of 14 institutions or agencies that have been tracking the rise of autism spectrum disorders as part of the CDC study. The local study involves St. Louis city, along with the counties of St. Louis, St. Charles, Jefferson and Franklin.

Researchers have yet to determine what's driving the increase, says Robert Fitzgerald, coordinator of the local project in the Department of Psychiatry at Washington University.

"In terms of data reported Thursday, Missouri is above the average, a little bit higher than the average," he says. "If you look at the prevalence between the 2002 surveillance report and the 2008 report, there has been a 78 percent increase across the network and a 23 percent increase from 2006 to 2008."

He says parents concerned about the disorders should take note of children showing "deficits in social interaction, communications and repetitive or unusual behaviors." He adds that some believe that the rise in the number of cases is due partly to better reporting, a view echoed by the CDC and other officials during a conference call with reporters.

"One of the things the data tell us with certainty: There are more children and families that need help," says Dr. Thomas Frieden, director of the CDC. "In recent years, we've learned more about autism than ever before and we know now that autism is nearly five times more common among boys than among girls, with one in 54 boys identified compared with one in 252 girls."

In Missouri, the rate for boys in the latest data was 21.6 for every 1,000 or 1 in 46, compared to 5.9 per 1,000 for girls, or 1 in 169. For white youngsters, the rate was 14.6 per 1,000, compared to 9.3 for black children, 9.0 for Hispanics and 9.8 for Asian or Pacific Islanders.

Coleen Boyle, head of the National Center on Birth Defects and Developmental Disabilities at CDC, said during the conference call Thursday that the tracking was providing "a more complete picture of autism, helping us to understand how communities identify children with autism. Tracking also helps identify potential risk factors. We know more about how advanced parental age and premature birth contribute to a child's risk of having autism."

In addition, Boyle said the tracking can help determine that many autistic children are not being diagnosed as early as they could be.

Boyle and Fitzgerald at Washington University stressed that parents need to be take action whenever a child doesn't appear to be developing normally.

"Don't wait," Boyle said. "The most important thing for parents to know is that it's critical to act quickly if there is a concern about your child's development. Talk to your child's doctor about your concerns. Call your local early intervention program or school system for free assessment and remember, you don't need a diagnosis to get services."

Missouri has passed a law requiring insurers to cover autism, but Mark Roithmayr, president of the advocacy group Autism Speaks, said at the conference sesson that many insurance companies "discriminate against families with autism denying reimbursement for the basic evidence-based services that often dramatically improve the quality of life of children with autism."

He took issue with those suggesting that the jump in numbers is explained mainly by more diagnosis, detection and awareness.  "A large portion of the increase, some of the 50 percent, remains unexplained," he said. "That is why we need to fund research aggressively including critical study of potential environmental factors. We need answers."

He added: "At one in 88, the United States is experiencing an autism epidemic. This is a national emergency in need of a national plan."

Still, the CDC's Frieden said, "Doctors have gotten better at diagnosing the condition. Communities have gotten better at providing services, so at this point, I think there is a possibility that the increase in identification is entirely the result of better detection."

He added that "we need to continue to increase the number of kids who are detected, detected early and enrolled in services early."

Although the data are based on research involving a relatively small number of communities in 14 states, the officials said the numbers probably reflected the prevalence of autism nationwide.

The Obama administration used the findings to call attention to its health reforms. It noted, among other things, that the Affordable Care Act, which is before the Supreme Court, prohibits the denial, limitation or exclusion of coverage to any child under age 19 based on a pre-existing condition.

The administration added that new health insurance plans or insurance policies must cover preventive services without cost-sharing, including autism screening for children at 18 and 24 months. It also noted that, starting in 2014, children with autism and developmental disorders and their families will have expanded access to affordable insurance options through proposed  insurance exchanges and improvements in Medicaid.

In a background paper, the administration called autism "a critical public health issue that deeply impacts the lives of millions of Americans." In the current fiscal year, it said the National Institutes of Health was spending about $169 million in research on autism and related conditions.

Other programs, it said, included the CDC's "Learn the Signs. Act Early" campaign to increase awareness of the disease.

NOTE: An earlier version of this story contained an error in reported statistics.

No Comments

Join The Beacon

When you register with the Beacon, you can save your searches as news alerts, rsvp for events, manage your donations and receive news and updates from the Beacon team.

Register Now

Already a Member

Getting around the new site

Take a look at our tutorials to help you get the hang of the new site.

Most Discussed Articles By Beacon Members

Conference of American nuns will mull response to Vatican charges

In Nation

7:55 am on Fri, 08.03.12

Meeting in St. Louis next week, the Leadership Conference of Women Religious will have its first opportunity as an assembled group to consider what to do after the Vatican issued a mandate for change this spring. It calls on the conference to reorganize and more strictly observe church teachings.

The 'free' Zoo

In Commentary

7:51 am on Tue, 05.22.12

When a family of four goes to the St. Louis Zoo, they can be forgiven for not knowing it will cost them $60, $72 if they park. If they can't pay, the alternative is to tell the kids they can't do what kids do at the zoo.

Featured Articles

The pope's St. Louis connection: St. Philippine Duchesne

In Region

1:58 am on Fri, 05.24.13

The world seems eager to learn more about Pope Francis, so learning that he admires St. Philippine Duchesne and her spiritual daughters — Argentinean nuns who have been under Francis' spiritual direction as they live among the poor — adds to understanding.

Snapshots: All about the Benjamin

In Region

1:58 am on Fri, 05.24.13

The Newman Money Museum at Washington University has a quirky pseudo-robot Ben Franklin in the basement that is essentially a TV screen projected into a plastic shell head.

Featured Articles

Barbecue joins the blues at this year's festival

In Out & About

2:13 am on Thu, 05.23.13

Organizers aren't trying to replace the rib fest, but music lovers will be able to find tangy sustenance as they listen to such greats as Mavis Staples (pictured), Big George Brock, Trombone Shorty, Kim Massie and Marquise Knox take the stage.

Featured Articles

Save that dirt, Howard Buffett says

In Science

11:09 am on Wed, 05.15.13

Speaking to reporters at Monsanto, Howard Buffett warned that future generations would foot the bill for irresponsible soil use. He urged leaders to address thorny issues such as malnutrition and environmental destruction.

Arch Grants winners set for debut

In InnovationSTL

11:32 am on Tue, 05.14.13

Twenty winners will split a million dollars and a wide array of professional services after this year's Arch Grants competition. Victors will also see one-on-one business mentoring in their prize package. The diverse group includes everything from biotech concerns to fashion enterprises.

Recent Articles

More Articles

Innovation and entrepreneurial activity are on the rise in St. Louis, especially in bioscience, technology and alternative energy. The Beacon's InnovationSTL section focuses on the people who are part of this wave, what they're doing and how this is shaping our future. To many St. Louisans, this wave is not yet visible. InnovationSTL aims to change that. We welcome you to share your knowledge, learn more about this vibrant trend and discuss its impact.

Featured Articles

Save that dirt, Howard Buffett says

In Science

11:09 am on Wed, 05.15.13

Speaking to reporters at Monsanto, Howard Buffett warned that future generations would foot the bill for irresponsible soil use. He urged leaders to address thorny issues such as malnutrition and environmental destruction.

Supreme Court rules unanimously for Monsanto in Roundup case

In Law Scoop

10:42 pm on Mon, 05.13.13

Vernon Bowman's challenge to Monsanto Co.'s patent on its Roundup Ready soybean seeds was billed as a David vs. Goliath contest. Goliath won and won big. The Supreme Court ruled unanimously that an Indiana soybean farmer had violated Monsanto's patent on its genetically engineered soybean seeds.

Featured Articles

The hidden link among burgers, drop-outs and tax reform

In Commentary

2:10 am on Thu, 05.23.13

You have to know your audience: McDonald's regulars don't need free-range chicken or a certain breed of beef; a second-chance high school needs personally motivated students as opposed to people ordered to attend and low-income Democrats by and large don't want a cigarette tax.

The lambs of sacrifice in chess

In On Chess

6:13 am on Wed, 05.22.13

Last week, Grandmaster Hikaru Nakamura sacrificed his crown as the King of America. He faced an individual decision to play against the best in the nation or the best on the planet. Find out what happened at that world-level tournament.

Featured Events:

More About The Beacon Home